Nursing Care Process of an Infant with an Orphan Disease under the Callista Roy's Model

Abstract

Introduction: Diseases with unspecified diagnosis are called orphan diseases; these are defined as those for which the patient may be in mortal danger or chronic disability, and have a prevalence of 1 case every 5,000 people. The Nursing Care Process allows providing a comprehensive care to the patient with these pathologies and his/her family. Objective: To provide a holistic nursing care to an infant with an orphan disease, under the Callista Roy's adaptation model. Methodology: The patient selection is carried out during the neurodevelopmental therapy in February of 2015; with the baby's mother authorization, the case analysis in mode of home follow-up starts by using the Nursing Care Process method (NCP) under the approach the Callista Roy's adaptation model. Results: At the end of the proposed Nursing Care Process, it could be observed and detected the improvement of ineffective responses by implementing Callista Roy's model with the infant and her mother, due to the fact that the baby gained weight; also she could strengthen her family ties because of the generation of a positive social and recreational environment, her mother was motivated to seek professional help in decision-making situations. Conclusions: By the interventions made, the progress of the infant during the follow-up period could be verified. The articulation of the Nursing Care Process method, Nursing theories and North American Nursing Diagnosis Association (NANDA), Nursing Outcomes Classification (NOC), Nursing Interventions Classification (NIC) NNN tools allow a holistic management of children with orphan diseases. [Portilla-Ordoñez SB, Villarreal-Peñaloza AF, Abreu-Peralta P. Nursing Care Process of an infant with an orphan disease under the Callista Roy's model. MedUNAB 2016; 19(2): 151-160].